Patient Advocacy News

25 Aug 202610:33 pm

advocacy25 Aug 2026 · 10:33 pm10:33 pm

Friedreich's Ataxia Patients Demand Change After Drug Reimbursement Campaign

Patients with Friedreich's Ataxia are demanding changes after their campaign for the reimbursement of the drug Skyclarys.

17 Aug 202610:07 pm

Health17 Aug 2026 · 10:07 pm10:07 pm

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Doctors Dismissed Woman's Agonizing Skin Condition for 15 Years Before True Diagnosis

Amy Colby shares her experience of doctors dismissing her painful skin condition as poor hygiene for 15 years, only to later discover the true diagnosis and rea

17 Aug 20263:57 pm

Science17 Aug 2026 · 3:57 pm3:57 pm

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Woman with Extremely Rare Disease Secures Clinical Trial Through Determination

Neena Nizar, through her determination, has become the first patient in a clinical trial for a rare disease that affects only 30 people globally.

Patient Advocacy News