Rare Disease Drug News

21 Aug 20269:50 pm

Health21 Aug 2026 · 9:50 pm9:50 pm

France Recalls Rare Disease Drug Tavneos Following Deaths

France has recalled the rare disease drug Tavneos, manufactured by U.S. biotech firm Amgen, following reports of patient deaths.

21 Aug 20262:31 am

Health21 Aug 2026 · 2:31 am2:31 am

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Rare disease drug recalled in Ireland after link to Japan deaths

A drug used to treat rare autoimmune diseases has been recalled in Ireland after being linked to 20 deaths in Japan.

14 Aug 20265:45 pm

Politics14 Aug 2026 · 5:45 pm5:45 pm

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Fianna Fáil Challenges HSE Stance on Funding for Rare Disease Drug Skyclarys

Most Fianna Fáil parliamentary party members have signed a letter expressing serious concerns about the HSE's recommendation to deny funding for Skyclarys, a dr

15 Jul 20269:27 pm

Healthcare15 Jul 2026 · 9:27 pm9:27 pm

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Campaigners Criticize 'Heartbreaking' Delays in Rare Disease Drug Decision

Campaigners have criticized the latest delay in the decision regarding the reimbursement of Skyclarys, a drug for people living with Friedreich's Ataxia, callin

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