Skyclarys News

Patients with Friedreich's Ataxia are demanding changes after their campaign for the reimbursement of the drug Skyclarys.

Uncertainty surrounds the decision regarding the drug Skyclarys, used for Friedreich's ataxia, as the HSE Senior Leadership Team is scheduled to meet to discuss

Campaigners are holding a demonstration in Dublin city centre, making a final push for the HSE to approve reimbursement for Skyclarys, a drug used to treat Frie

Campaigners for Friedreich's Ataxia patients have made a final appeal to the HSE to approve the Skyclarys treatment before a decision is made next week.

Most Fianna Fáil parliamentary party members have signed a letter expressing serious concerns about the HSE's recommendation to deny funding for Skyclarys, a dr

The HSE Drugs Group is scheduled to meet today to further discuss whether to cover the cost of Skyclarys, a drug that can slow the progression of Friedreich's A

Campaigners have criticized the latest delay in the decision regarding the reimbursement of Skyclarys, a drug for people living with Friedreich's Ataxia, callin